Taelor

Taelor had cancer and I had to have have him put to sleep on 10 Aug 2017, a day shy of 5 months after Tom died.

~Jendy

Caregiver? Originally published 6/6/2017

I got a phone call today about my needs. I'm hoping this means a step in the right direction towards getting a caregiver again. I qualify for 39 hours a month or 9 hours a week. It would be nice if I get one.

I'm still waiting to hear about a power scooter...

.....

Now its 6/27/2017 @00:04

I got a call yesterday from a potential caregiver, only to be told she got hired by someone else. Oh well, I'll be meeting a different caregiver on Thursday at about 13:00. She is only available from 9-11.

Also on Thursday, I will get a visual field test at 10:40, so before the meeting with the new potential caregiver.

I got my power scooter 2 weeks ago and I'm loving it.

I'm very tired now, so time for sleep...

~Jendy

Writing by EJ Douglas

‎EJ Douglas‎ to

May 23 at 8:16am · 

I wrote this for a friend who needed to know her worth and so did her potential suitor. Only after did I realize that it can apply to nearly every woman I know....

She is as strong as the winds of a hurricane.
Do not try to contain her, she will slip through your fingers.
She is as fragile as the wings of a spun glass fairy.
Do not try to hold her too tightly, she will break.
She is as fierce as a mother bear protecting her cubs.
Do not try to rule her. She will cut you to shreds.
She is as beautiful as the heavens.
Do not be jealous, she will turn her back on you.
She is as loving and passionate as Aphrodite herself
Do not mistake this for weakness, she can destroy you with a glance.
Her heart has known more pain and sorrow than you will understand in 10,000 lifetimes
And more joy and happiness than you will understand in 10,000 more.
She keeps it locked away, more secure than Davey Jones locker.
If you truly love her, patience will guide you there and trust is the only key.
-EJD

Thanks sister from another mister. I love this and see a some of myself in this even if I'm not the person you wrote it for. <3 font="">

Thinking about Tom and ...

A friend posted in his journal about suicide and the voice in his head telling him to do it. Tom told me that he had a voice in HIS head telling him to kill himself.

Cancer beat him to that, unless he overdosed on morphine when trying to reduce the pain from the cancer.

Either way, I found him dead in my bed on March 11, 2017. I had gotten up that morning to let the dog out and thought to let Tom rest as long as he needed to. But, I got a movie in the mail that Tom said he liked to watch and put it on the bed next to him

Tom's birthday

Last night, April 28 2017, Brandon and I went out for dinner to honor Tom's birthday. We both raised our drink glasses to him.

I'm still locked in the fog that makes it a bit more difficult to get things done. A common occurance that happens when someone's partner dies.

I'm going to the celebration of his life tonight. He has touched the hearts of many people.

A new assessment

I'm going to be assessed again on May 5th... *insert eye roll here*

There aren't any available in my area, but my case manager is going to assess me again. But hopefully I'll be getting my power scooter in the next month or so and that will help.

Tom's Battle...

Tom lost his battle against cancer on 11 March 2017. That was the day he was going to contact the doctor about  going forward with Death With Dignity, but it turned out he didn't need to.

I found a movie that made me think of Tom, it's called The Danish Girl.  It reminds me of Tom in the way that he told me that he felt like he was a woman in a male body. Kind of like I feel like I'm a man in a female body.

Here's a little something I found online...

The tragic true story behind The Danish Girl

Einar Wegener would kill himself in the spring. He had chosen a date – May 1, 1930 – after a year spent in torment. The cause of his suffering was quite simple: he was sure he was a woman, born into the wrong body. Or perhaps it was more complicated: sometimes Wegener, whose life is soon to be portrayed on film by the Oscar-winning British actor Eddie Redmayne in The Danish Girl, felt he was two people in the same body, each fighting for supremacy. 

One was a Danish landscape painter, a steadfast man who, in his own words, “could withstand storms”. He was married to a woman whose strength and talent matched, or perhaps even surpassed, his own: Gerda Wegener, a successful Art Deco illustrator who produced portraits of fashionable women for magazines such as Vogue and La Vie Parisienne.

The other shared none of these qualities. Lili Elbe was, as she set down in letters and notes for an autobiography, a “thoughtless, flighty, very superficially-minded woman”, prone to fits of weeping and barely able to speak in front of powerful men. But despite her womanly defects, by February 1930 she was becoming too powerful for Wegener to resist. “I am finished,” he wrote at the time. “Lili has known this for a long time. That’s how matters stand. And consequently she rebels more vigorously every day.”

I'm mad at myself for forgetting what female name he said he wanted if he got the surgery. I wish I had written it down.

Tom's decline

Tom has stopped chemo treatment after discussing it with his oncologist, the chemo was only extending his life with no chance for remission. He was experiencing neuropathy in his hands and feet because of the chemo treatment and it stopped when he stopped treatment.

He only has weeks left and has been making plans for what to do with his remains.

I love him so very much, but seeing him suffer is hard on me and I told him I didn't  want him to extend his life if it only made him miserable. He's ready to let go and I'm willing to let him die on his own terms.

I wonder if this is what I'd need to finally get a caregiver... that's too high a price to pay.

Power Scooter

I finally had an appointment with the wheelchair specialist at PT today. YAY!! I expressed my interest in a power scooter. They asked the all the pertinent questions, had me drive a power chair so he could see that I was capable of driving something with a joystick, though the scooter I want uses a tiller, which I'm familiar with.

Now to wait the approximate 2 months before I get it. My insurance needs to approve it, then order it. It should get to me shortly after my birthday at the end of March. lol  

Revised parenting plan

3 October 2016

I will need to get a hearing about the new parenting plan and primary custody of Nicolas and child support if Steven doesn't respond by 25 October 2016.

This was done and I was granted primary custody of Nicolas on 21 November 2016.

Assessment

I had my assessment for getting caregivers today, 14 Nov 2016. It looks like I will qualify. I'll be finding out more later today.

I'll text Justin and let him know what I know so far.